When things got really bad, I took Flagyl

I don’t like taking medicines, especially antibiotics, and I have not taken any in the last three years, but there were times when I did have to. Things got totally out of control. At that point, you need to just take your losses.
I once tried to just outlast it. It was six weeks of misery and pain, and nothing to show for it. The Pouchitis was as bad in the end as it was in the beginning.

I usually took 500 mg of Flagyl. I find that the namebrand drug in capsules worked better than the generic as it made me less sick. The capsule would actually make it into my stomach before dissolving. My issue with Flagyl is that it makes me sick. I can only take it for a week or so before I feel sick all the time and start throwing up. This is one of the reasons why I had to find an alternative.

I hear a lot of things about people taking VSL#3, yogurt and other probiotics. I tried some probiotics a while back, but found they made little to no difference.

The good news is that I have not needed to take anything for over three years now.

10 Responses to When things got really bad, I took Flagyl

  1. Alan Graveen says:

    I also take Flagyl BUT the generic and take 1000 MGs, I am having some tests done at the end of this month and the Doctor is also going to test for Ciliac Disease and food allergies NOW after 14 years maybe I will have a better alternative to antibiotics and Prednisone!

  2. D says:

    diagnosed 2002 ulcerative (pan)colitis, severe. (my uc is a result of nail fungus medications diflucan/lamisil/sporanox was on for 3 years) bowel movements up to 30 x per day diarrhea. never took any asacol/lialda/prednisone etc for uc ever. 2009 hospitalized 5 days for peritonitis (hole in colon), given flagyl IV & complete bowel rest, felt great, slept all night & dreamt R.E.M. first time since being diagnosed. started on flagyl 500 mg 2 x day again august 2011 & got grrreat relief, almost no uc symptoms, & metallic taste side effect diminished after first couple of weeks on flagyl. minor hand & foot tingling started after 2 months. having a life again is so great – can work, care for my kids, be a better wife, happy again! full of vim & vigor, energy! smiling again!

  3. Daniela says:

    I have had a J-pouch for 14 years now, I was 20 yo when I had my operations and I’m from Australia. I have had flare ups of pouchitis throughout the years and even when I was pregnant with my first child. I have found over the years what works for me. Do a liquid fast, by drinking at least 2 to 3 litres of water (I add organic non-pastuerised apple cider vinegar) and any other liquid, I have been added freshly squeezed green juices, such as the juice Juergen has on his main page and also other variations. In the past when I have had severe pouchitis, I’ve taken the antibiotics, which help with the pouchitis but I seem to display most of the side-effects and live a miserable existence. So that is when I went looking for my alternative and a naturopath started me on a multi-vitamin 1 cap x 3 per day, probiotics 2 caps x 3 per day and a herbal tablet 2 caps x 3 per day. I started these 2-3 days before I finished the antibiotics (which I had been on for 10 days or so). The herbal tablet was called Herbstat by ‘bioceuticals’ contents: allium sativum (garlic), Tabebuia serratifolia (Pau D’Arco) bark, Hydrastis canadensis (golden seal) root, Echinacea angustifolia (Echinacea) root and Arctium lappa (Burdock) root. These herbs all have an antibiotic action as well as wholistically support your body. I have listed the ingredients as I was told at the time that bioceuticals no longer made this tablet, I hope that is no longer true, as this controlled my case of pouchitis for nearly a year without side-effects and at the time I wasn’t taking very good care of my diet. Now days I try to include some meditation during a flare up as well and that seems to help quite a bit. Overall, until this year, I had lived without pouchitis for 3 to 4 years. I look after myself by keeping my weight down, eat whole fresh foods and I try to exercise, although hard to fit in as I work night shift and look after my two young children after work. Another symptom controller I use is Panadeine (paracetamol and codeine) and this slows the bowels down and takes away that feeling of constant urgency which has me running to the toilet even when my pouch is empty. I’ll only take it at night so I can sleep through the night and when I have a flare up I try not to use it more than 2 to 3 nights in a row. I also use psyllium during a flare up and this will help. Like Juergen says, you have to learn to read your own body. I’ve learnt to use all facets of the health system and you must self educate, the journey continues.

  4. juergen says:

    Good to hear from all of you, and to have you share what has worked for you personally. It shows that with sufficient lifestyle changes, it is possible to lead a good and productive life without depending on medicines to get you through the day. Medicines should be reserved for emergencies, not be used to handle chronic conditions.
    Daniela: In my experience, urgency is a side-effect of eating or drinking an irritant. Rather than taking something to control the symptom, long term, it’s more productive to identify the irritant and avoid it.
    I have now cut most fruit out of my diet. I talked about that in my piece on Fructose, and I have had excellent results with this. Almost all of my remaining symptoms have gone away since. As I have been saying, Sugar is evil, but fruit sugar seems to be even worse. And one of the worst offenders that is always touted as oh-so-healthy: Honey. Definitely on the top of the avoid list for me now.
    All the best, and be well.

  5. Laura says:

    Hi all! My name is Laura Venditozzi-Fraser, I’m 22 and have had extreme UC since I was 13 (undiagnosed from age 9 though). When I was 17, my colitis got so bad I had to have the colon removed, and had a J-pouch created which removed the UC but instead developed into IBS then Pouchitis, leading to numerous hospitalisations since.

    Over the years I’ve found it really hard to deal with this condition, and have tried every kind of diet out there: dairy-free, wheat/gluten free, vegetarian, vegan… At one point I tried being “Vegiac” but that was the last straw.

    I’ve since come across Sherry Brescias’ “Great Taste, No Pain” manuels, and have been trying to follow her 3 column idea for about a year. It has to be said: if I stick to it and don’t cave in to cravings, it does work; although as ever, never takes the condition fully away. My problem is I’m a total foodie, so rising above temptation is particularly challenging!

    Incedentally, I’ve since learned how to meditate, as my family have insisted I try it, and to curb my stress levels, so I intend (over the xmas period) to really try at it. Stress for me has a massive influence over my condition, so it needs kept in check. Lack of sleep also has a big effect, so I rarely go out for late night parites or clubbing etc, and aim for at least 7 hours per night.

    My issue however was after reading Juergens post on fructose, (one of Sherrys strategies is to eat fruit for breakfast, and smoothies etc) which I’ve been doing, and yet now I’ve read the column, I realise it’s been hindering me more so, given the high fructose content.

    My problem is my gut is incredibly sensitive, so even having something plain like rice krispies and soya milk for breakfast, with a peppermint tea, can sometimes cause upsets.

    I try to eat a relatively healthy diet, with fruit, veg and very little fast food or junk. I avoid sugary drinks, alcohol and even caffeine, and opt for sugar-free diluting juice/squash. I take VSL No 3 once a day, and have found that without it, I do get worse. I used to try exercise minimum 3 times a week, which I enjoy, but have not had time to do for a while. Juergons note on exercising is so true: when I’m sleeping well and keeping fit, I somehow have more energy and can tackle the condition better.

    I write to you all to ask for some tips on how to survive the xmas period, when there’s an abundance of bad foods about. I’ll be fine not having alcohol as it does nothing for me, and I’ll try follow Sherrys’ columns and just stick to a veggie diet, but it’s a total pain having to avoid the sweeties, chocolate, turkey & other meats and general christmassy things.

    How do you all cope?

    Any repsonses will be most welcome!


    Laura ^^

  6. Laura says:

    Sorry: forgot to add that until recently, I have not been hospitalised for about 3 years. However: I had been on long-term antibiotics for a lot of that period, (metranidazole/flaggyl), however my consultant was keen to get me off them lest I get peripheral neuropathy.

    I went off them maybe a year ago now? And since then, the condition has creeped up on me again, till the point I was fleeing to the toilet like a mad woman, and had to go to hospital and be put back on the antibiotics. They did work, and cleared out my system, but then once I finished the course the symptoms started returning. So for now I’m back on metranidazole 3x a day, but I’d like to not have to rely on drugs for general maintenance!

  7. juergen says:

    Hello Laura
    If you look more into the connection between the fructose / fructan and your periods of flareups, you might make some connections. I certainly did.
    I must admit, it’s hard to stay healthy and off of sugar. I am by no means perfect, but, since I have avoided those five or six worst fruits that I mentioned, and totally avoid honey or any sort of soft drinks or fruit drinks, I am doing very well. I personally don’t eat breakfast, my first meal is a large lunch, and then a large dinner. I only eat twice a day.
    A sensitive intestine is the result of years and years of illness and medicines. Your intestine has never really had the chance to heal. Have you tried Psyllium? It seems to have a calming effect on some people, including myself. How about Vitamin D? Are you taking any?
    Fact is, I actually eat pretty normal. People wonder how you can live with my diet, and I tell them, I can live perfectly happy and well.
    Stress is a huge thing. I think a sizable part of our condition is actually psychosomatic. The secret to controlling stress is to no longer care about the outcome. Once you learn that secret, you will feel much better.
    But Laura, the important thing for you to remember is: There is a solution out there for you. If I found it, then you can find it as well. There is a life without pain, and it’s not that far off. You just have to find what works, and do more of that, and avoid what makes you worse. It’s really as simple as that.
    BTW: Stevia is a wonderful sugar replacement.
    All the Best, and be well.

  8. lisa says:

    What about Agave sweetener as an alternative to sugar? Any good? Or artificial sweeteners?

    • juergen says:

      Hello Lisa
      I don’t use any sweeteners beyond Stevia. But I find that specifically in food, a small amount of plain, balanced sugar does not affect me as long as I don’t overdo it. The other thing to avoid is doing something on a daily basis. If you need to treat yourself or have to eat something for a social occasion like a piece of cake at a wedding, make sure you don’t do it every day. You might get away with once a week, or once a month, but then give your intestine a chance to heal itself. The intestine is not helpless, it does defend itself, you just can’t overwhelm it.

  9. sylvia says:

    Hi I was extremely glad to have found this site, I have had m pouch for 6 years now and have only been getting pouchitis in the last year. I also have cuffitis. on reading your blog im a wee bit confused as to how you know if you have this candida pouchitis or just pouchitis ? . I am extremely keen to get started on this new route of cutting out sugar, having a colon cleanse, again im confused as to which colon clear out I need to take ?

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